Table 1 Inclusion and exclusion criteria
Screening criteria | Inclusion criteria | Exclusion criteria |
|---|---|---|
Language study is reported in | â–ª English | â–ª Not English |
Year study was published | â–ª Published after 1999 | â–ª Published before 1999 |
Study participants | ▪ Human studies ▪ Children and adolescents (aged 0 to 19 years) born with CHDa ▪ Parents, guardians, foster parents, older siblings, or grandparents primarily responsible for the care of children or adolescents born (age 0 to 19 years) with CHD, including those that ask their perceptions of their child’s experiencesa | ▪ Animal studies ▪ Only includes Adults (age 20 years and older) born with CHD ▪ Ages of participants are NOT reported ▪ Adults with CHD who retrospectively reflect on their experiences growing up with CHD ▪ Only children, adolescents, and/or adults with acquired heart disease ▪ Only children, adolescents, or adults with inherited and/or acquired heart arrythmias ▪ Only children, adolescents, and/or adolescents with multi-organ syndromes present at birth ▪ Only primary caregivers of adults (age 20 + years) born with CHD ▪ Only non-primary caregivers of children adolescents, or adults living with CHD ▪ Only healthcare providers ▪ Only caregivers of children, adolescents and/or adults with acquired heart disease ▪ Only caregivers of children, adolescents, and/or adults with inherited or acquired arrhythmias ▪ Only caregivers of children, adolescents, and/or adults with multi-organ syndromes present at birth ▪ Only prenatal studies conducted on caregivers expecting a child with CHD |
Study outcomes reported | â–ª At least one negative psychosocial consequence (e.g., negative emotions, negative feelings, cognitive and emotional processes, negative behavior, negative health behaviors, poor lifestyle, negative body image, poor self-esteem, negative impact on social relationships or networks, negative experiences with social structures, material and financial disadvantages, negative impact on spirituality, impaired development, or adjustment) â–ª Examines factors contributing to the development of negative psychosocial consequence(s) â–ª Reports on an intervention developed to decrease negative psychosocial consequence(s) | â–ª Does NOT examine negative psychosocial consequences, factors that contribute to negative psychosocial consequences, or interventions with the goals of decreasing negative psychosocial consequences |
Country where the study takes place | â–ª High-income country (GNI per capita of $12,696)b | â–ª Only low- or middle- income countryc |
Evidence source | â–ª Primary quantitative, qualitative, multi-method, and mixed method studies â–ª Secondary analysis of primary data â–ª Theses and dissertations | â–ª Conference/meeting abstracts or posters â–ª Published abstracts â–ª Case reports â–ª Knowledge syntheses/reviews â–ª Study protocols â–ª Letters â–ª Commentaries â–ª Websites â–ª Opinion pieces â–ª Blogs â–ª Magazines â–ª Pamphlets â–ª Clinical guidelines â–ª Scientific statements or reports â–ª Association or group statements or reports â–ª Books â–ª Book chapters â–ª Social media groups and posts |