Table 5 Outcome measures and concepts

QoL (source)

Generic

15-D questionnaire (Boesen et al. [14])

AQoL-4D (Wu et al. [28])

EQ VAS (Boesen et al. [14])

EQ-5D (Deenik et al. [35], Goldberg et al. [17])

EQ-5D-5L (Boesen et al. [14], Hewett et al. [22])

German Life Satisfaction Questionnaire (Mangels et al. [23]);

MCOHPQ (Gade et al. [16])

SF-12 (Semrau et al. [33], Mangels et al. [23], Wu et al. [28])

SF-36 (Angst et al. [30], Marcussen et al. [34])

WHOQoL bref (Deenik et al. [35])

Disease-specific

DEMQOL (Goldberg et al. [17])

EORTC QLQ-C30 (Brédart et al. [31])

FACT-G (Grudzen et al. [20])

FAMS (Boesen et al. [14])

I-PDQ-39 (Monticone et al. [24])

MLHF (Monticone et al. [24])

MSIS-29 (Boesen et al. [14])

Coping (source)

Generic

AEQ (Semrau et al. [33])

CSQ (Angst et al. [30])

FESV (Semrau et al. [33]; Mangels et al. [23])

PRCQ-C (Hechler et al. [21])

Disease-specific

ASES (Hamnes et al. [18])

Satisfaction (source)

Generic

CSQ-8 (Marcussen et al. [34])

HCAHPS (O'Leary et al. [25])

MCOHPQ (Gade et al. [16])

Picker (O'Leary et al. [25])

Press Ganey (O'Leary et al. [25])

QPP (Singer et al. [27])

Unknown measure/self-developed (Counsell et al. [15]; Cheung et al. [19])

Disease-specific

EORTC IN-PATSAT 32 (Brédart et al. [31])

Functional ability and health status (source)

Generic

ADL (Counsell et al. [15])

FFkA (Semrau et al. [33])

Lawton’s Instrumental Activities of Daily Living Scale (Wu et al. [28])

LHS (Goldberg et al. [17])

PDI (Mangels et al. [23])

P-PDI (Hechler et al. [21])

PSEQ (Mangels et al. [23])

SES (Mangels et al. [23])

Disease-specific

FFbH-R (Semrau et al. [33])

FIQ (Hamnes et al. [18])

MDS-UPDRS (Monticone et al. [24])

Psychiatric morbidity (source)

Generic

ADS (Hampel et al. [32])

BDI (Mangels et al. [23])

DASS-21 (Wu et al. [28])

DIKJ (Hechler et al. [21])

GHQ-20 (Hamnes et al. [18])

HADS (Angst et al. [30], Hampel et al. [32])

K10 (Marcussen et al. [34])

PHQ-9 (Grudzen et al. [20]; Sidebottom et al. [26])

SCL-90-R (Hampel et al. [32])

Disease-specific

EDE-Q (Ziser et al. [29])

Pain (source)

ESAS (Sidebottom et al. [26])

German Pain Questionnaire (Semrau et al. [33])

Faces Pain Scale – Revised (Hechler et al. [21])

WHYMPI (Angst et al. [30])

Managing one’s own health care (source)

EC-17 (Hamnes et al. [18])

Treatment success (Source)

GPE (Monticone et al. [24])

URICA-S (Ziser et al. [29])

Therapeutic relationship (source)

HAQ (Ziser et al. [29])

PAM-SF (O'Leary et al. [25])