Table 1 Table of stakeholders who took part in the consultation exercise

DCAs

Young onset team DCA (n = 1)

REACT crisis team DCA (n = 1) (when a person has an additional mental health crisis on top of their dementia)

Community DCA’s (n = 3)

SOLACE

A service within the local University Health Board which exists to provide support to carers and those diagnosed with dementia, depression or severe later life mental illness. Their aim to help prevent admission to hospital and deterioration in relation to being in hospital.

Group discussion followed by individual priority setting exercise

DCA’s

Liaison Psychiatry

A service that covers wards in the general hospital setting. Their role is to help PLWD when they are in hospital if they are struggling and who are exhibiting behaviours that challenge or if they are anxious or agitated such as walking around a lot and the staff are not able to cope

Group interview followed by individual priority setting exercise

Continence service team

Nurse consultant (n = 1)

CNSs (n = 7)

NHS Continence Service

An outpatient based service. The role of the team is to accept and take referrals from primary care general practitioners district nurses and others to see patients with incontinence and to assess and put in place a suitable management plan for them

Group discussion followed by individual priority setting exercise with CNSs

Individual Interview with nurse consultant followed by setting exercise

Occupational therapist (n = 1)

Facebook

Currently works on an elderly ward with both functional patients and PLWD. Previous employment was on a specific dementia ward in a community hospital

Individual interview followed by priority setting exercise

PLWD (n = 2)

Family carers (n = 11)

DCA (n = 10)

Activities coordinator of local care home (n = 1)

Volunteer from the Alzheimer’s society (n = 1)

Dementia Consultation Event

A whole day event in which issues around toileting and continence were explored through narrative and creative presentations (through pictures, poems and artistic expression, arts, and discussion.

Group discussion followed by individual priority setting exercise