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Table 3 Primary and secondary outcomes of interest

From: Parent-directed intervention versus controls whilst their child waits for diagnostic assessment: a systematic review protocol

Outcome category Constructs Measures and time-points
Primary outcomes
Parent and family related outcomes Parenting stress Parent-reported questionnaire e.g. the Parenting Stress Index (normative standard score)
A continuous variable, measured pre and post intervention/waiting period or post assessment appointment.
Family quality of life Parent Questionnaire e.g. The Family Quality of Life Scale (normative score)
A continuous variable, measured pre and post intervention/waiting period or post assessment appointment.
Secondary outcomes
Child-related outcomes Child adaptive behaviour/global functional skills Parent-reported questionnaire e.g. the Vinelands Adaptive Behaviour Scale (normative standard score)
A continuous variable, measured pre- and post intervention/waiting period or post assessment appointment.
Service-related outcomes Time to assessment Time in days, weeks or months
A continuous variable measured post assessment appointment.
Adherence or attendance Attendance or adherence to recommendations achieved or not achieved.
A dichotomous variable measured post assessment appointment.