Table 3 Primary and secondary outcomes of interest
Outcome category | Constructs | Measures and time-points |
|---|---|---|
Primary outcomes | ||
Parent and family related outcomes | Parenting stress | Parent-reported questionnaire e.g. the Parenting Stress Index (normative standard score) A continuous variable, measured pre and post intervention/waiting period or post assessment appointment. |
Family quality of life | Parent Questionnaire e.g. The Family Quality of Life Scale (normative score) A continuous variable, measured pre and post intervention/waiting period or post assessment appointment. | |
Secondary outcomes | ||
Child-related outcomes | Child adaptive behaviour/global functional skills | Parent-reported questionnaire e.g. the Vinelands Adaptive Behaviour Scale (normative standard score) A continuous variable, measured pre- and post intervention/waiting period or post assessment appointment. |
Service-related outcomes | Time to assessment | Time in days, weeks or months A continuous variable measured post assessment appointment. |
Adherence or attendance | Attendance or adherence to recommendations achieved or not achieved. A dichotomous variable measured post assessment appointment. | |