From: Peer support for carers and patients with inflammatory bowel disease: a systematic review
Study ID | Population | Age (inclusion criteria) | Estimated sample size | Intervention | Comparator | Outcome | Study design |
---|---|---|---|---|---|---|---|
Blockman 2018 (CA) [56] | Teens living with chronic illness | 12–20a | 26 | Peer support for teens and their parents | NA | Physical health, depression | Before-and-after study |
Luu 2011 [57] | Individuals with IBD and their family members | NR | NR | Power of two: peer support programme providing psychosocial support services by telephone or email through peer laypersons with experiential knowledge of comparable medical and personal concerns | NA | Anxiety, health practices | Before-and-after study |
NCT03938324 2019 [58] | Adolescents and young adults with chronic disease | 16–22 | 225 | Peer i-coaching: telephone/text-based secure interface to allow adolescents and young adults to access knowledge, experience, and instrumental/emotional support from a trained peer coach (18–26 years), who has already developed independence and is an active self-manager | Monthly newsletter with educational content and monthly phone call from study staff to answer questions regarding content | HRQoL, emotional health | RCT |
NCT03827109 2019 [59] | Youth with IBD | 10–17 | 300 | Mentee-mentor relationships with group educational activities, online educational information, and a parent support component Weekly contact (e.g. text, phone), with in-person contact 1–2 times per month, one of which can be attending a group activity together | Educational group events on the same topics (with no social time), educational information posted online, and monthly encouragement to engage in activities in the community | HRQoL, disease severity, number of hospital admissions, clinic appointments, missed appointments, mentor and parent QoL | RCT |
NCT03630146 2018 [60] | Teens with IBD | 12–18 | 262 | iPeer2Peer programme: peer mentorship programme where mentors will encourage youth to develop and engage in disease self-management skills and provide social support, through Skype video sessions | Standard care but without the iPeer2Peer Program | HRQoL, anxiety, disease activity, health Services | RCT |