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Table 2 Characteristics of ongoing studies

From: Peer support for carers and patients with inflammatory bowel disease: a systematic review

Study ID

Population

Age

(inclusion criteria)

Estimated

sample size

Intervention

Comparator

Outcome

Study design

Blockman 2018 (CA) [56]

Teens living with chronic illness

12–20a

26

Peer support for teens and their parents

NA

Physical health, depression

Before-and-after study

Luu 2011 [57]

Individuals with IBD and their family members

NR

NR

Power of two: peer support programme providing psychosocial support services by telephone or email through peer laypersons with experiential knowledge of comparable medical and personal concerns

NA

Anxiety, health practices

Before-and-after study

NCT03938324 2019 [58]

Adolescents and young adults with chronic disease

16–22

225

Peer i-coaching: telephone/text-based secure interface to allow adolescents and young adults to access knowledge, experience, and instrumental/emotional support from a trained peer coach (18–26 years), who has already developed independence and is an active self-manager

Monthly newsletter with educational content and monthly phone call from study staff to answer questions regarding content

HRQoL, emotional health

RCT

NCT03827109 2019 [59]

Youth with IBD

10–17

300

Mentee-mentor relationships with group educational activities, online educational information, and a parent support component

Weekly contact (e.g. text, phone), with in-person contact 1–2 times per month, one of which can be attending a group activity together

Educational group events on the same topics (with no social time), educational information posted online, and monthly encouragement to engage in activities in the community

HRQoL, disease severity, number of hospital admissions, clinic appointments, missed appointments, mentor and parent QoL

RCT

NCT03630146 2018 [60]

Teens with IBD

12–18

262

iPeer2Peer programme:

peer mentorship programme where mentors will encourage youth to develop and engage in disease self-management skills and provide social support, through Skype video sessions

Standard care but without the iPeer2Peer Program

HRQoL, anxiety, disease activity, health Services

RCT

  1. Abbreviations: CA conference abstract, HRQoL health-related quality of life, IBD inflammatory bowel disease, NA not applicable, NR not reported, RCT randomised controlled trial
  2. a Information retrieved from clinicaltrials.gov register (NCT03170167). The study described in the register is conducted on people with various chronic diseases including inflammatory bowel disease