From: Patient engagement strategies for adults with chronic conditions: an evidence map
Patient and Family Engagement (PFE) | Patients, families, their representatives, and health professionals working in active partnership at various levels across the health care system—direct care, organizational design and governance, and policymaking—to improve health and health care” [ 5 ]. In addition, we used the term PFE to represent engagement of the patient and family, as well as non-family caregivers, who the patient deems part of his or her care. |
Chronic diseases | Conditions that last 1 year or more and require ongoing medical attention or limit activities of daily living or both.” |
PFE levels | Direct patient-care level strategy is a strategy that directly inform the patients’ own treatment decisions, health behaviors, or outcomes; a health system level strategy is one that engages patients in efforts that have an impact beyond their own health care such as improving health care quality; community-policy level strategy is one that engages patients, consumers, or citizens in policymaking or that engages communities in health care policies. |
Benefits categorization for reported findings | ‘Positive effects’ describe a study where the authors made clear unequivocal statements about an overall positive effect of the reviewed interventions; ‘potential benefits’ reported when the authors mentioned likely benefits; ‘unclear benefits’ when the authors were inconclusive; and ‘harms’ when the authors reported harm from the reviewed interventions. |