From: Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review
PCC element | Proposed scoping review target |
Population | Children, adolescents, and young adults (CAYA) aged 0-25 years in PPC |
Concepts | PROMs to assess symptoms, care needs, and/or burden, reported either by the patient, caregivers or HCP (proxy reports) |
Context | The child may be cared for at any level of the healthcare services, at home, or included in a research setting. |