Table 2 Characteristics of included qualitative studies
Author/s, year, country Aim | Setting Participants | Demographic details for PLWD | Methods MMAT score |
|---|---|---|---|
Study 1: Bliss et al. 2013 [61] USA To describe health literacy needs related to incontinence and skin care among family or friend caregivers of individuals with AD and develop supportive and educational materials that address these | Setting Home Participants Family/friend adult caregivers (n = 48) Spouses (44%), daughters (31%), or extended family members/friends (25%) Recruited from community-based agencies | Gender Female (75%) Age (mean + SD) years 64 ± 14 Mental status AD or dementia | Methods Focus groups and interviews MMAT score: 100% |
Study 1: Mullins et al. 2016 [62] USA To examine barriers to communicating with healthcare professionals and health literacy about incontinence among different types of informal caregivers of individuals with AD | Same as Bliss et al. 2013 | See Bliss et al. 2013 | See Bliss et al. 2013 MMAT score: 100% |
Study 2: Hutchinson et al. 1996 [63] USA To addresses the range and variation of toileting problems, management strategies used by family and employed caregivers | Setting AD specific day centre Home Participants Family members who participated in the centre support groups (n = 16) Staff members employed at the day care centre (n = 13) | Demographic characteristics of patients with AD who attended the day centre were not reported Mental status AD | Methods Participant observation at the day care centre, clients’ home, and support groups Interviews with families and staff members Based on qualitative ethology MMAT score: 75% |
Study 3: Rolnick et al. 2013 [64] USA To examine healthcare providers’ perspectives regarding improving communication with patients and their caregivers about incontinence and dementia | Setting Secondary care providers Participants Physicians (n = 8)/nurse practitioners (n = 2)/pharmacist (n = 1) Potential participants suggested by advisory committee | Not applicable Mental status Dementia | Methods Interviews MMAT score: 100% |
Study 4: Ostaszkiewicz et al. 2018 [65] Australia To explore nursing home staff members’ beliefs and expectations about what constitutes “quality continence care” for people living in nursing homes | Setting Nursing home Participants Nursing home staff (n = 19) Registered nurses (n = 8) Enrolled nurses (n = 4) Personal care workers (n = 7) Recruited using snowballing technique; selective placement of information in print and electronic media; and information sessions at several nursing homes | Not applicable Mental status Most nursing home residents were cognitively impaired | Methods Interviews Naturalistic inquiry using a qualitative exploratory descriptive research approach MMAT score: 100% |
Study 14: Scerri et al. 2018 [66] Malta To categorise the perceived and observed needs of persons with dementia admitted in acute medical wards and to explore whether these needs are being or have been met. | Setting Acute medical wards (n = 3) Participants PLWD and their family members (n = 12) | Gender Age (mean) years 84.7 Range 71 to 93 Mental status Dementia | Methods Interviews Observations using dementia care mapping MMAT score: 75% |