Subsection | Key components |
---|---|
Project overview | A description of the research project, including background information and overarching goals. |
The research team | Members of core working group and their positions. |
Responsibilities and opportunities for patient researchers, patient researcher liaison/facilitator, and the broader research team | a. Patient researchers—to participate in the research process, communicate concerns to the research liaison, prepare for meetings by reviewing documents, etc. b. Patient researcher liaison/facilitator—to communicate regularly with the patient researchers, listen to and address concerns, ensure integration of patient researchers into the research team, etc. c. Research team—value lived experience as a form of knowledge, use knowledge appropriately and confidentially, maintain fair and structured relationships, be mindful of word choice in written materials. |
Process (work plan) | A model for the process of patient engagement during biweekly meetings; a project timeline outlining milestones and frequency of full-team meetings. |
Expected outcomes | Major project milestones, including formal publications, non-traditional knowledge sharing activities, future research projects, etc. |
Our working environment | A description of the environment fostered by the research team, as guided by the principles within Strategy for Patient-Oriented Research’s Patient Engagement Framework (i.e., mutual respect, inclusiveness, co-building, and supports (safe space, educational supports, financial supports) [26]. |