Table 1 Inclusion and exclusion criteria
Inclusion criteria | Exclusion criteria |
|---|---|
Type of papers: peer-reviewed empirical papers, qualitative papers including case studies and mixed-methods (both telephone and postal surveys are acceptable only if open-ended questions are asked) | Papers that are not primary research e.g. systematic reviews, meta-analysis |
Language of papers: English | Papers in other languages |
Date: published between 1984 and present | Papers were written before 1984 |
Population of focus: unpaid family members or informal caregiver | Population of focus relates to other groups of carers e.g. paid carers, professionals |
Age group: 18 and above | Below 18 |
Primary illness of interest: moderate to advanced dementia | Other illnesses |
Setting: domestic home setting, unpaid home-based care | Other formal care establishments where care provision is paid for |
Focus of papers: current experiences or views or needs of family caregiver | Focus on the views of others, or where death has already occurred |