TY - JOUR AU - Absher, J. R. AU - Cummings, J. L. PY - 1992 DA - 1992// TI - Dementia diagnosis and therapy in the elderly JO - Compr Ther VL - 18 ID - Absher1992 ER - TY - STD TI - Abuabara K, Freeman E, Dellavalle R. The role of systematic reviews and meta-analysis in dermatology. J Investig Dermatol. 2012;132(11) https://core.ac.uk/download/pdf/82244743.pdf. Accessed 13 Oct 2020. UR - https://core.ac.uk/download/pdf/82244743.pdf ID - ref2 ER - TY - BOOK AU - Al-Janabi, H. AU - Carmichael, F. AU - Oyebode, J. PY - 2017 DA - 2017// TI - Informal care: choice or constraint? Scandinavian journal of caring sciences UR - https://doi.org/10.1111/scs.12441 DO - 10.1111/scs.12441 ID - Al-Janabi2017 ER - TY - JOUR PY - 2019 DA - 2019// TI - Alzheimer’s disease facts and figures JO - Alzheimers Dement VL - 15 UR - https://doi.org/10.1016/j.jalz.2019.01.010 DO - 10.1016/j.jalz.2019.01.010 ID - ref4 ER - TY - JOUR AU - Arcand, M. PY - 2015 DA - 2015// TI - End-of-life issues in advanced dementia: part 1: goals of care, decision-making process, and family education JO - Can Fam Physician VL - 61 ID - Arcand2015 ER - TY - JOUR AU - Aslam, S. AU - Emmanuel, P. PY - 2010 DA - 2010// TI - Formulating a researchable question: a critical step for facilitating good clinical research JO - Indian J Sexually Transmitted Dis VL - 31 UR - https://doi.org/10.4103/0253-7184.69003 DO - 10.4103/0253-7184.69003 ID - Aslam2010 ER - TY - JOUR AU - Borsje, P. AU - Hems, M. A. AU - Lucassen, P. L. AU - Bor, H. AU - Koopmans, R. T. AU - Pot, A. M. PY - 2016 DA - 2016// TI - Psychological distress in informal caregivers of patients with dementia in primary care: course and determinants JO - Fam Pract VL - 33 UR - https://doi.org/10.1093/fampra/cmw009 DO - 10.1093/fampra/cmw009 ID - Borsje2016 ER - TY - JOUR AU - Brodaty, H. AU - Donkin, M. PY - 2009 DA - 2009// TI - Family caregivers of people with dementia JO - Dialogues Clin Neurosci VL - 11 UR - https://doi.org/10.31887/DCNS.2009.11.2/hbrodaty DO - 10.31887/DCNS.2009.11.2/hbrodaty ID - Brodaty2009 ER - TY - JOUR AU - Cheng, S. T. PY - 2017 DA - 2017// TI - Dementia caregiver burden: a research update and critical analysis JO - Curr Psychiatry Rep VL - 19 UR - https://doi.org/10.1007/s11920-017-0818-2 DO - 10.1007/s11920-017-0818-2 ID - Cheng2017 ER - TY - JOUR AU - Chertkow, H. AU - Feldman, H. H. AU - Jacova, C. AU - Massoud, F. PY - 2013 DA - 2013// TI - Definitions of dementia and predementia states in Alzheimer’s disease and vascular cognitive impairment: consensus from the Canadian conference on diagnosis of dementia JO - Alzheimers Res Ther VL - 5 UR - https://doi.org/10.1186/alzrt198 DO - 10.1186/alzrt198 ID - Chertkow2013 ER - TY - JOUR AU - Cooke, A. AU - Smith, D. AU - Booth, A. PY - 2012 DA - 2012// TI - Beyond PICO: the SPIDER tool for qualitative evidence synthesis JO - Qual Health Res VL - 22 UR - https://doi.org/10.1177/1049732312452938 DO - 10.1177/1049732312452938 ID - Cooke2012 ER - TY - JOUR AU - Costa-Requena, G. AU - Espinosa Val, M. C. AU - Cristòfol, R. PY - 2015 DA - 2015// TI - Caregiver burden in end-of-life care: advanced cancer and final stage of dementia JO - Palliat Support Care VL - 13 UR - https://doi.org/10.1017/S1478951513001259 DO - 10.1017/S1478951513001259 ID - Costa-Requena2015 ER - TY - JOUR AU - Davies, N. AU - Maio, L. AU - Rait, G. AU - Iliffe, S. PY - 2014 DA - 2014// TI - Quality end-of-life care for dementia: what have family carers told us so far? A narrative synthesis JO - Palliat Med VL - 28 UR - https://doi.org/10.1177/0269216314526766 DO - 10.1177/0269216314526766 ID - Davies2014 ER - TY - BOOK AU - Dowrick, A. AU - Southern, A. PY - 2014 DA - 2014// TI - Dementia 2014: opportunity for change ID - Dowrick2014 ER - TY - JOUR AU - Etkind, S. N. PY - 2017 DA - 2017// TI - How many people will need palliative care in 2040? Past trends, future projections and implications for services JO - BMC Med VL - 15 UR - https://doi.org/10.1186/s12916-017-0860-2 DO - 10.1186/s12916-017-0860-2 ID - Etkind2017 ER - TY - JOUR AU - Grand, J. H. G. AU - Caspar, S. AU - MacDonald, S. W. S. PY - 2011 DA - 2011// TI - Clinical features and multidisciplinary approaches to dementia care JO - J Multidiscip Healthc VL - 4 ID - Grand2011 ER - TY - JOUR AU - Gibbons, L. E. AU - Teri, L. AU - Logsdon, R. PY - 2002 DA - 2002// TI - Anxiety symptoms as predictors of nursing home placement in patients with Alzheimer’s disease JO - J Clin Geropsychol VL - 8 UR - https://doi.org/10.1023/A:1019635525375 DO - 10.1023/A:1019635525375 ID - Gibbons2002 ER - TY - JOUR AU - Fauth, E. B. AU - Femia, E. E. AU - Zarit, S. H. PY - 2016 DA - 2016// TI - Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: associations with informal caregivers’ stress and well-being JO - Aging Ment Health VL - 20 UR - https://doi.org/10.1080/13607863.2015.1049114 DO - 10.1080/13607863.2015.1049114 ID - Fauth2016 ER - TY - JOUR AU - Haro, J. M. AU - Kahle-Wrobleski, K. AU - Bruno, G. AU - Belger, M. AU - Dell’Agnello, G. AU - Dodel, R. PY - 2014 DA - 2014// TI - Analysis of burden in caregivers of people with Alzheimer’s disease using self-report and supervision hours JO - J Nutr Health Aging VL - 18 UR - https://doi.org/10.1007/s12603-014-0500-x DO - 10.1007/s12603-014-0500-x ID - Haro2014 ER - TY - JOUR AU - Harris, D. PY - 2007 DA - 2007// TI - Forget me not: palliative care for people with dementia JO - Postgrad Med J VL - 83 UR - https://doi.org/10.1136/pgmj.2006.052936 DO - 10.1136/pgmj.2006.052936 ID - Harris2007 ER - TY - JOUR AU - Hawker, S. AU - Payne, S. AU - Kerr, C. AU - Hardey, M. AU - Powell, J. PY - 2002 DA - 2002// TI - Appraising the evidence: reviewing disparate data systematically JO - Qual Health Res VL - 12 UR - https://doi.org/10.1177/1049732302238251 DO - 10.1177/1049732302238251 ID - Hawker2002 ER - TY - JOUR AU - Karantzoulis, S. AU - Galvin, J. E. PY - 2011 DA - 2011// TI - Distinguishing Alzheimer’s disease from other major forms of dementia JO - Expert Rev Neurother VL - 11 UR - https://doi.org/10.1586/ern.11.155 DO - 10.1586/ern.11.155 ID - Karantzoulis2011 ER - TY - JOUR AU - Kerpershoek, L. AU - Vugt, M. AU - Wolfs, C. AU - Woods, B. AU - Jelley, H. AU - Orrell, M. PY - 2018 DA - 2018// TI - Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice JO - Aging Ment Health VL - 22 UR - https://doi.org/10.1080/13607863.2017.1390732 DO - 10.1080/13607863.2017.1390732 ID - Kerpershoek2018 ER - TY - BOOK AU - Knapp, M. AU - Prince, M. AU - Guerchet, M. AU - McCrone, P. AU - Prina, M. AU - Comas-Herrera, A. PY - 2014 DA - 2014// TI - Dementia UK update ID - Knapp2014 ER - TY - BOOK AU - Knapp, M. AU - Prince, M. PY - 2007 DA - 2007// TI - Dementia UK PB - Alzheimer’s Society CY - London ID - Knapp2007 ER - TY - CHAP AU - Kokorelias, K. M. PY - 2016 DA - 2016// TI - The lived palliative care experiences of community-dwelling older adults with dementia in South Western Ontario BT - Electronic thesis and dissertation repository ID - Kokorelias2016 ER - TY - JOUR AU - Lacey, R. E. AU - McMunn, A. AU - Webb, E. PY - 2018 DA - 2018// TI - Informal caregiving and markers of adiposity in the UK household longitudinal study JO - PLoS One VL - 13 UR - https://doi.org/10.1371/journal.pone.0200777 DO - 10.1371/journal.pone.0200777 ID - Lacey2018 ER - TY - BOOK AU - Lewis, F. AU - Schaffer, S. K. AU - Sussex, J. AU - O’Neill, P. AU - Cockcroft, L. PY - 2014 DA - 2014// TI - The trajectory of dementia in the UK - making a difference ID - Lewis2014 ER - TY - CHAP AU - Lorenc, T. AU - Petticrew, M. AU - Whitehead, M. PY - 2014 DA - 2014// TI - Crime, fear of crime and mental health: synthesis of theory and systematic reviews of interventions and qualitative evidence BT - (public Health Research, no. 2.2.) appendix 5, quality assessment for the systematic review of qualitative evidence PB - NIHR Journals Library CY - Southampton ID - Lorenc2014 ER - TY - JOUR AU - McLaughlin, T. AU - Feldman, H. AU - Fillit, H. PY - 2010 DA - 2010// TI - Dependence as a unifying construct in defining Alzheimer’s disease severity JO - Alzheimers Dement VL - 6 UR - https://doi.org/10.1016/j.jalz.2009.09.004 DO - 10.1016/j.jalz.2009.09.004 ID - McLaughlin2010 ER - TY - JOUR AU - Mesterton, J. AU - Wimo, A. AU - Langworth, S. AU - Winblad, B. AU - Jönsson, L. PY - 2010 DA - 2010// TI - Cross sectional observational study on the societal costs of Alzheimers disease JO - Curr Alzheimer Res VL - 7 UR - https://doi.org/10.2174/156720510791162430 DO - 10.2174/156720510791162430 ID - Mesterton2010 ER - TY - JOUR AU - Methley, A. M. AU - Campbell, S. AU - Chew-Graham, C. AU - McNally, R. AU - Cheraghi-Sohi, S. PY - 2014 DA - 2014// TI - PICO, PICOS and SPIDER: a comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews JO - BMC Health Serv Res VL - 14 UR - https://doi.org/10.1186/s12913-014-0579-0 DO - 10.1186/s12913-014-0579-0 ID - Methley2014 ER - TY - JOUR AU - Moher, D. AU - Shamseer, L. AU - Clarke, M. AU - Ghersi, D. AU - Liberati, A. AU - Petticrew, M. PY - 2015 DA - 2015// TI - Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement JO - Syst Rev VL - 4 UR - https://doi.org/10.1186/2046-4053-4-1 DO - 10.1186/2046-4053-4-1 ID - Moher2015 ER - TY - STD TI - Morris SM, King C, Turner M, Payne S. Family carers providing support to a person dying in the home setting: a narrative literature review. Palliat Med. 2015:1–9 https://pubmed.ncbi.nlm.nih.gov/25634635/. Accessed 9 Oct 2020. UR - https://pubmed.ncbi.nlm.nih.gov/25634635/ ID - ref34 ER - TY - BOOK PY - 2012 DA - 2012// TI - The guidelines manual, process and methods [PMG6] ID - ref35 ER - TY - BOOK PY - 2006 DA - 2006// TI - Costing report: implementing NICE SCIE guidance in England ID - ref36 ER - TY - STD TI - Oliver M. The individual and social models of disability: Paper presented at the Joint Workshop of the Living Options Group and the Research Unit of the Royal College of; 1990. https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Oliver-in-soc-dis.pdf. Accessed 20 May 2020. UR - https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Oliver-in-soc-dis.pdf ID - ref37 ER - TY - JOUR AU - Oliver, M. PY - 1986 DA - 1986// TI - Social policy and disability: some theoretical issues JO - Disabil Handicap Soc VL - 1 UR - https://doi.org/10.1080/02674648666780021 DO - 10.1080/02674648666780021 ID - Oliver1986 ER - TY - JOUR AU - Plöthner, M. AU - Schmidt, K. AU - Jong, L. AU - Zeilder, J. AU - Damm, K. PY - 2019 DA - 2019// TI - Needs and preferences of informal caregivers regarding outpatient care for the elderly: a systematic literature review JO - BMC Geriatr VL - 19 UR - https://doi.org/10.1186/s12877-019-1068-4 DO - 10.1186/s12877-019-1068-4 ID - Plöthner2019 ER - TY - BOOK AU - Popay, J. AU - Roberts, H. M. AU - Sowden, A. AU - Petticrew, M. AU - Arai, L. AU - Rodgers, M. PY - 2006 DA - 2006// TI - Guidance on the conduct of narrative synthesis in systematic reviews ID - Popay2006 ER - TY - STD TI - Ritchie CW, Terrera GM, Quinn TJ. Dementia trials and dementia tribulations: methodological and analytical challenges in dementia research. Alzheimers Res Ther. 2015;7(31) https://alzres.biomedcentral.com/articles/10.1186/s13195-015-0113-6. Accessed 10 Oct 2020. UR - https://alzres.biomedcentral.com/articles/10.1186/s13195-015-0113-6 ID - ref41 ER - TY - CHAP AU - Russell, R. AU - Chung, M. AU - Balk, E. M. AU - Atkinson, S. AU - Giovannucci, E. L. AU - Ip, S. AU - Taylor Mayne, S. AU - Raman, G. AU - Ross, A. C. AU - Trikalinos, T. AU - West, K. P. AU - Lau, J. PY - 2009 DA - 2009// TI - Issues and challenges in conducting systematic reviews to support development of nutrient reference values: workshop summary: nutrition research series, Vol. 2 BT - Issues and challenges in conducting systematic reviews to support development of nutrient reference values: workshop summary: nutrition research series, Vol. 2 PB - Agency for Healthcare Research and Quality (US) CY - Rockville ID - Russell2009 ER - TY - JOUR AU - Seignourel, P. J. AU - Kunik, M. E. AU - Snow, L. AU - Wilson, N. AU - Stanley, M. PY - 2008 DA - 2008// TI - Anxiety in dementia: a critical review JO - Clin Psychol Rev VL - 28 UR - https://doi.org/10.1016/j.cpr.2008.02.008 DO - 10.1016/j.cpr.2008.02.008 ID - Seignourel2008 ER - TY - JOUR AU - Schardt, C. AU - Adams, M. B. AU - Owens, T. AU - Keitz, S. AU - Fontelo, P. PY - 2007 DA - 2007// TI - Utilization of the PICO framework to improve searching PubMed for clinical questions JO - BMC Med Inform Decis Mak VL - 7 UR - https://doi.org/10.1186/1472-6947-7-16 DO - 10.1186/1472-6947-7-16 ID - Schardt2007 ER - TY - BOOK AU - Schlosser, R. PY - 2007 DA - 2007// TI - Appraising the quality of systematic reviews ID - Schlosser2007 ER - TY - CHAP AU - Schulz, R. AU - Eden, J. PY - 2016 DA - 2016// TI - Committee on family caregiving for older adults;board on health care services; health and medicine division; National Academies of sciences, Engineering,and medicine; families caring for an aging America BT - Family caregiving roles and impacts PB - National Academies Press (US) CY - Washington ID - Schulz2016 ER - TY - STD TI - Shah AJ, Wadoo O, Latoo J. Psychology distress in carers of people with mental disorders. British J Med Pract. 2010;3(3) https://www.bjmp.org/content/psychological-distress-carers-people-mental-disorders. Accessed 11 Oct 2020. UR - https://www.bjmp.org/content/psychological-distress-carers-people-mental-disorders ID - ref47 ER - TY - JOUR AU - Sleeman, K. E. AU - Ho, Y. K. AU - Verne, J. AU - Gao, W. AU - Higginson, I. J. PY - 2014 DA - 2014// TI - Reversal of English trend towards hospital death in dementia: a population-based study of place of death and associated individual and regional factors, 2001-2010. GUIDE_Care project JO - BMC Neurol VL - 14 UR - https://doi.org/10.1186/1471-2377-14-59 DO - 10.1186/1471-2377-14-59 ID - Sleeman2014 ER - TY - JOUR AU - Treloar, A. AU - Crugel, M. AU - Adamis, D. PY - 2009 DA - 2009// TI - Palliative and end of life care of dementia at home is feasible and rewarding: results from the ‘Hope for home’ study JO - Dementia. VL - 8 UR - https://doi.org/10.1177/1471301209104975 DO - 10.1177/1471301209104975 ID - Treloar2009 ER - TY - JOUR AU - Steen, J. T. AU - Lemos Dekker, N. AU - Gijsberts, M. H. E. AU - Vermeulen, L. H. AU - Mahler, M. M. AU - The, B. A. PY - 2017 DA - 2017// TI - Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development JO - BMC Palliat Care VL - 16 UR - https://doi.org/10.1186/s12904-017-0201-4 DO - 10.1186/s12904-017-0201-4 ID - Steen2017 ER - TY - STD TI - Woodman C, Baillie J, Sivell S. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Support Palliat Care. 2015; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5256384/. Accessed 10 Oct 2020. UR - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5256384/ ID - ref51 ER - TY - JOUR AU - Zanetti, O. AU - Solerte, S. B. AU - Cantoni, F. PY - 2009 DA - 2009// TI - Life expectancy in Alzheimer’s disease (AD) JO - Arch Gerontol Geriatr VL - 49 UR - https://doi.org/10.1016/j.archger.2009.09.035 DO - 10.1016/j.archger.2009.09.035 ID - Zanetti2009 ER -