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Table 1 Eligibility criteria (reproduced with permission from Luedke et al. [9])

From: Barriers and facilitators to implementation of epilepsy self-management programs: a systematic review using qualitative evidence synthesis methods

Study CharacteristicIncludeExclude
Population• Adults (aged ≥ 18) with new or chronic epilepsy
• Family members and/or caregivers of those with epilepsy
• Stakeholders involved in implementation (e.g., neurologists, health coaches, nurses, administrators)
• Children
• Populations with < 70% adults
• Severe learning disabilities
• Non-epileptic seizures (i.e., psychogenic seizures)
• Populations who have been recruited for depression or who have major mental illness (e.g., bipolar, major depressive disorder, schizophrenia)
InterventionSelf-management defined as interventions that aim to equip patients with skills to actively participate and take responsibility in the management of epilepsy in order to function optimally through at least knowledge acquisition and a combination of 1 or more of the following:
• Stimulation of independent sign/symptom monitoring
• Medication management
• Enhancing problem-solving and decision-making skills for epilepsy treatment management, safety promotion (e.g., driving)
• Changing health behaviors (including stress management, sleep, substance use)a
Examples include:
• Psychoeducation (e.g., cognitive behavioral therapy)
• Behavioral interventions (e.g., adherence strategy training)
• Personalized care plan development and coaching
• Multicomponent interventions that include self-management but where self-management is not the primary intervention
• Cognitive behavioral therapy focused on comorbid mental illness in patients with epilepsy (e.g., depression in patients with epilepsy)
• Education-only interventions
• General care delivery interventions (e.g., introducing specialist nurse practitioner or implementation of clinical practice guidelines)
ComparatorAny (usual care, attention control, active intervention)None
OutcomesAny relevant clinical, process, or economic outcome to epilepsy self-management interventionsNone
Setting• Delivered in person (individual or group) in outpatient settings, or remotely via telehealth technology (e.g., mobile or internet)
• Delivered by health care team members or trained lay workers
• Inpatient
• Delivered only in emergency departments
Designb• Randomized trials
• Nonrandomized trials
• Controlled before-after studiesb
• Prospective cohort study if it includes a properly adjusted analysis
• Qualitative and survey designs if specifically addressing facilitators and barriers to adoption of epilepsy self-management interventions
• Self-described pilot studies and/or sample size < 20
• Studies with retrospective data collection
• Interrupted time series
• Case series
• Systematic reviews/meta-analyses
• Reports that do not include primary data on barriers or facilitators
Publication typesFull publication in a peer-reviewed journalLetters, editorials, reviews, dissertations, meeting abstracts, protocols without results
  1. aAdapted from Jonkman et al. [32]
  2. bSee Cochrane EPOC criteria for definitions and details [33]
  3. cOECD Organization for Economic Cooperation and Development includes Australia, Austria, Belgium, Canada, Chile, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Israel, Italy, Japan, Korea, Latvia, Luxembourg, Mexico, Netherlands, New Zealand, Norway, Poland, Portugal, Slovak Republic, Slovenia, Spain, Sweden, Switzerland, Turkey, United Kingdom, United States