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Table 2 Qualitative data and outcomes sought in manuscripts describing psychosocial problems in patients and families affected by non-intellectually impairing craniofacial malformation conditions. Some qualitative data items and outcomes are entirely or mostly subjective and pose a substantial risk for bias

From: Epidemiology, prevention, diagnosis, treatment, and outcomes for psychosocial problems in patients and families affected by non-intellectually impairing craniofacial malformation conditions: a systematic review protocol of qualitative data

Minimum data extracted:

 Patient population

 Psychosocial problem or diagnosis

Other data sought:

 Clinical and functional outcome

 Patient, parental, and others’ attitudes toward craniofacial malformations

 Psychosocial effect on family functioning and marital integrity

 Parental and others’ reaction to the birth of a craniofacially deformed child

 Effect of misinformation on parents

 Impact of craniofacial malformations on development of self-concept, self-image, and body image

 Role of gender and other socio-economic and demographic confounds in patient, parental, and others’ attitudes toward the craniofacially deformed

 Positive aspects in the experience of a craniofacial malformation condition

 Congruence of teachers’, parents’, and patients’ opinions on the psychosocial development of craniofacially deformed children

 Contribution of aesthetic facial appearance versus non-aesthetic features to patient, parental, and others’ attitudes toward the craniofacially deformed