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Table 2 Qualitative data and outcomes sought in manuscripts describing psychosocial problems in patients and families affected by non-intellectually impairing craniofacial malformation conditions. Some qualitative data items and outcomes are entirely or mostly subjective and pose a substantial risk for bias

From: Epidemiology, prevention, diagnosis, treatment, and outcomes for psychosocial problems in patients and families affected by non-intellectually impairing craniofacial malformation conditions: a systematic review protocol of qualitative data

Minimum data extracted:
 Patient population
 Psychosocial problem or diagnosis
Other data sought:
 Clinical and functional outcome
 Patient, parental, and others’ attitudes toward craniofacial malformations
 Psychosocial effect on family functioning and marital integrity
 Parental and others’ reaction to the birth of a craniofacially deformed child
 Effect of misinformation on parents
 Impact of craniofacial malformations on development of self-concept, self-image, and body image
 Role of gender and other socio-economic and demographic confounds in patient, parental, and others’ attitudes toward the craniofacially deformed
 Positive aspects in the experience of a craniofacial malformation condition
 Congruence of teachers’, parents’, and patients’ opinions on the psychosocial development of craniofacially deformed children
 Contribution of aesthetic facial appearance versus non-aesthetic features to patient, parental, and others’ attitudes toward the craniofacially deformed