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Table 1 Descriptors of data to be extracted from included studies

From: Communication strategies for rare cancers: a systematic review protocol

Author

Year of publication

Country

Study design

Cancer type investigated (if applicable)

Communication strategy

Intent of communication strategy

Intended audience

Population size (if applicable)

Findings

Quantitative

Qualitative

Paper A authors

xxxx

UK

[Type]

[Rare cancer type]

Leaflet in a General Practice reception

General Information to increase awareness about [rare cancer type]

Patient, public

X

X number of people said they would pick up the leaflet, Y number said they found the information useful

There was an increase in undiagnosed patients raising concerns about [rare cancer]; however, the content of leaflet was no more informative than that provided by online

Paper B authors

xxxx

USA

[Type]

[Rare cancer type]

Online discussion forum

Discussion between patients suffering from [a rare cancer] and experts in the field

Patient, healthcare professionals, research specialists

X

X people viewed the forum, Y people commented, X% were patients and X% were healthcare professionals

Helped understanding, allowed communication between affected individuals

Paper C authors

xxxx

Australia

[Type]

[Rare cancer type]

Text

Test result of a novel pharmaceutical agent

Patient

X

X number of people were involved in the study

Patients understood implications of the result

  1. An example table of data that will be extracted from each study. If several studies examine homogenous interventions, these results will be included and a meta-analysis will be performed