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Table 3 Quality domains used in key clinical guidelines, quality indicator development projects and systematic reviews

From: Identifying models of delivery, care domains and quality indicators relevant to palliative day services: a scoping review protocol

Author and year Country/areaa Population Total number of quality domains (indicators or recommendations) Quality domains
van der Steen JT et al. European Association for Palliative Care (EAPC). White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014 Mar;28(3):197–209. Europe Older adults with dementia 11 [57] Applicability of palliative care
Person-centred care, communication and shared decision making
Setting care goals and advance planning
Continuity of care
Prognostication and timely recognition of dying
Avoiding overly aggressive, burdensome or futile treatment
Optimal treatment of symptoms and providing comfort
Psychosocial and spiritual support
Family care and involvement
Education of the health care team
Societal and ethical issues
Uphoff EP et al. Development of generic quality indicators for patient-centred cancer care by using a RAND modified Delphi method. Cancer Nurs. 2012 Jan-Feb;35(1):29-37. Holland Adults with cancer 5 [17] QIs developed from 92 initial recommendations Communication
Physical support
Psychosocial care
After-care
Organisation of care
Leemans K et al. Towards a standardised method of developing quality indicators for palliative care: protocol of the Quality indicators for Palliative Care (Q-PAC) study. BMC Palliat Care. 2013 Feb 8;12:6. Belgium/Holland Palliative care 9 [53] Assessment and treatment of symptoms
Assessment and treatment of psychological problems
Assessment and treatment of spiritual and religious problems
Informing patients and their family members
Care planning with patients and family members
Treatment and end of life decisions
Type of care and circumstances of dying
Family support
Continuity of care
National Consensus Project for Quality Palliative Care, Clinical Practice Guidelines for Quality Palliative Care, 2013 USA Palliative care 8 [27] Structure and processes of care
Physical aspects of care
Psychological and psychiatric aspects of care
Social aspects of care
Spiritual, religious and existential aspects of care
Cultural aspects of care
Care of the imminently dying patient
Ethical and legal aspects of care
National Quality Forum: A National Framework and Preferred Practices for Palliative and Hospice Care Quality. Washington, DC, National Quality Forum, 2006 USA Palliative care 8 [33] Structures and processes of care
Physical aspects of care
Psychological and psychiatric aspects of care
Social aspects of care
Spiritual, religious and existential aspects of care
Cultural aspects of care
Care of the imminently dying patient
Ethical and legal aspects of care
McCusker M et al. Institute for Clinical Systems Improvement. Palliative Care for Adults. Updated November 2013. USA Palliative care 5 [13] Patient presents with new or established diagnosis of a serious illnessb
Initiate palliative care discussionb
Assess patient’s palliative care needs
Physical aspects of care
Cultural aspects of care
Psychological and psychiatric aspects of care
Social aspects of care
De Roo ML et al. Quality indicators for palliative care: update of a systematic review. J Pain Symptom Manage. 2013 Oct;46(4):556-72. EURO IMPACT Belgium/Holland Palliative care 8 [33] Structure and process of care
Physical aspects of care
Psychological and psychiatric aspects of care
Social aspects of care
Spiritual, religious and existential aspects of care
Cultural aspects of care
Care of the imminently dying patient
Ethical and legal aspects of care
Mularski RA et al. Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup. Crit Care Med 2006;34(11 Suppl):S404eS411. USA Palliative care 7 [18] Patient and family-centred decision making
Communication within the team and with patients and family
Continuity of care
Emotional and practical support for patients and family
Symptom management and comfort care
Spiritual support for patients and family
Emotional and organisational support for clinicians
Dy SM et al. Measuring what matters: top-ranked quality indicators for hospice and palliative care from the American academy of hospice and palliative medicine and hospice and palliative nurses association. J Pain Symptom Manage. 2015 Apr;49(4):773-81 USA Palliative care 9 [10] Structure and processes of care
Physical aspects of care
Psychological and psychiatric aspects of care
Social aspects of care
Spiritual, religious and existential aspects of care
Cultural aspects of care
Care of the patient at the end of life
Ethical and Legal Aspects of care
Global measures
National Institute of Clinical Excellence (NICE). 2004. Guidance on Cancer Services Improving Supportive and Palliative Care for Adults with Cancer. The Manual. UK Palliative care 12 [20] Co-ordination of care
User involvement
Face-to-face communication
Information
Psychological support services
Spiritual support services
General palliative care services, including care of dying patients
Specialist palliative care services
Rehabilitation services
Complementary therapy services
Services for families and carers, including bereavement care
Workforce development
van Riet Paap J et al. IMPACT research team. Consensus on quality indicators to assess the organisation of palliative cancer and dementia care applicable across national healthcare systems and selected by international experts. BMC Health Serv Res. 2014 Sep 17;14:396. Holland Palliative cancer and dementia care 7 [23] Access to palliative care
Infrastructure
Assessment tools
Personnel
Documentation of clinical data
Quality
Education
Vasse E et al. The development of quality indicators to improve psychosocial care in dementia. Int Psychogeriatr. 2012 Jun;24(6):921-30. Holland Dementia 4 [12] Diagnosis and assessment
Care plan and treatment
Behavioural problems
Caregivers
Woitha K et al. Validation of quality indicators for the organization of palliative care: a modified RAND Delphi study in seven European countries (the Europall project). Palliat Med. 2014 Feb;28(2):121-9. Holland (Europal) Palliative care 6 [56] Definition of a palliative care service
Access to palliative care
Assessment tools
Personnel in palliative care services
Quality and safety
Reporting clinical activity of palliative care services
  1. NICE National Institute for Clinical Excellence
  2. aBased on first author location
  3. bNot included as domains