Author and year | Country/areaa | Population | Total number of quality domains (indicators or recommendations) | Quality domains |
---|---|---|---|---|
van der Steen JT et al. European Association for Palliative Care (EAPC). White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014 Mar;28(3):197–209. | Europe | Older adults with dementia | 11 [57] | Applicability of palliative care Person-centred care, communication and shared decision making Setting care goals and advance planning Continuity of care Prognostication and timely recognition of dying Avoiding overly aggressive, burdensome or futile treatment Optimal treatment of symptoms and providing comfort Psychosocial and spiritual support Family care and involvement Education of the health care team Societal and ethical issues |
Uphoff EP et al. Development of generic quality indicators for patient-centred cancer care by using a RAND modified Delphi method. Cancer Nurs. 2012 Jan-Feb;35(1):29-37. | Holland | Adults with cancer | 5 [17] QIs developed from 92 initial recommendations | Communication Physical support Psychosocial care After-care Organisation of care |
Leemans K et al. Towards a standardised method of developing quality indicators for palliative care: protocol of the Quality indicators for Palliative Care (Q-PAC) study. BMC Palliat Care. 2013 Feb 8;12:6. | Belgium/Holland | Palliative care | 9 [53] | Assessment and treatment of symptoms Assessment and treatment of psychological problems Assessment and treatment of spiritual and religious problems Informing patients and their family members Care planning with patients and family members Treatment and end of life decisions Type of care and circumstances of dying Family support Continuity of care |
National Consensus Project for Quality Palliative Care, Clinical Practice Guidelines for Quality Palliative Care, 2013 | USA | Palliative care | 8 [27] | Structure and processes of care Physical aspects of care Psychological and psychiatric aspects of care Social aspects of care Spiritual, religious and existential aspects of care Cultural aspects of care Care of the imminently dying patient Ethical and legal aspects of care |
National Quality Forum: A National Framework and Preferred Practices for Palliative and Hospice Care Quality. Washington, DC, National Quality Forum, 2006 | USA | Palliative care | 8 [33] | Structures and processes of care Physical aspects of care Psychological and psychiatric aspects of care Social aspects of care Spiritual, religious and existential aspects of care Cultural aspects of care Care of the imminently dying patient Ethical and legal aspects of care |
McCusker M et al. Institute for Clinical Systems Improvement. Palliative Care for Adults. Updated November 2013. | USA | Palliative care | 5 [13] | Patient presents with new or established diagnosis of a serious illnessb Initiate palliative care discussionb Assess patient’s palliative care needs Physical aspects of care Cultural aspects of care Psychological and psychiatric aspects of care Social aspects of care |
De Roo ML et al. Quality indicators for palliative care: update of a systematic review. J Pain Symptom Manage. 2013 Oct;46(4):556-72. | EURO IMPACT Belgium/Holland | Palliative care | 8 [33] | Structure and process of care Physical aspects of care Psychological and psychiatric aspects of care Social aspects of care Spiritual, religious and existential aspects of care Cultural aspects of care Care of the imminently dying patient Ethical and legal aspects of care |
Mularski RA et al. Proposed quality measures for palliative care in the critically ill: a consensus from the Robert Wood Johnson Foundation Critical Care Workgroup. Crit Care Med 2006;34(11 Suppl):S404eS411. | USA | Palliative care | 7 [18] | Patient and family-centred decision making Communication within the team and with patients and family Continuity of care Emotional and practical support for patients and family Symptom management and comfort care Spiritual support for patients and family Emotional and organisational support for clinicians |
Dy SM et al. Measuring what matters: top-ranked quality indicators for hospice and palliative care from the American academy of hospice and palliative medicine and hospice and palliative nurses association. J Pain Symptom Manage. 2015 Apr;49(4):773-81 | USA | Palliative care | 9 [10] | Structure and processes of care Physical aspects of care Psychological and psychiatric aspects of care Social aspects of care Spiritual, religious and existential aspects of care Cultural aspects of care Care of the patient at the end of life Ethical and Legal Aspects of care Global measures |
National Institute of Clinical Excellence (NICE). 2004. Guidance on Cancer Services Improving Supportive and Palliative Care for Adults with Cancer. The Manual. | UK | Palliative care | 12 [20] | Co-ordination of care User involvement Face-to-face communication Information Psychological support services Spiritual support services General palliative care services, including care of dying patients Specialist palliative care services Rehabilitation services Complementary therapy services Services for families and carers, including bereavement care Workforce development |
van Riet Paap J et al. IMPACT research team. Consensus on quality indicators to assess the organisation of palliative cancer and dementia care applicable across national healthcare systems and selected by international experts. BMC Health Serv Res. 2014 Sep 17;14:396. | Holland | Palliative cancer and dementia care | 7 [23] | Access to palliative care Infrastructure Assessment tools Personnel Documentation of clinical data Quality Education |
Vasse E et al. The development of quality indicators to improve psychosocial care in dementia. Int Psychogeriatr. 2012 Jun;24(6):921-30. | Holland | Dementia | 4 [12] | Diagnosis and assessment Care plan and treatment Behavioural problems Caregivers |
Woitha K et al. Validation of quality indicators for the organization of palliative care: a modified RAND Delphi study in seven European countries (the Europall project). Palliat Med. 2014 Feb;28(2):121-9. | Holland (Europal) | Palliative care | 6 [56] | Definition of a palliative care service Access to palliative care Assessment tools Personnel in palliative care services Quality and safety Reporting clinical activity of palliative care services |